#LabelsLastaLifetime: DfE must respect children's data privacy rights
#LabelsLastaLifetime: DfE must respect children's data privacy rights
Latest: July 6, 2024
An update on our legal action
In 2018 we began regulatory and legal action with a legal team at Leigh Day. We have decided to end these challenges, and to continue work in these areas in other ways.
Through regulatory and legal ro…
Read more"No child or parent should fear that childhood stigma will last a lifetime."
We are challenging the Department for Education’s collection and distribution of very sensitive personal information about children and we need your support to fund our legal challenge.
A new law was passed last September to allow the government to collect confidential data and send it to a national database forever. From there the children’s data are given away, without consent.
"Pregnancy, mental health, young offender. Autism, disability, hearing impairment, and learning difficulties".
These are just some of the new labels that will be added to children’s named records from January 2018. By June, data from the Alternative Provision Census will be added to the National Pupil Database and ready for distribution to third parties.
We want to stop the British government collecting these data without telling the children and parents, and stop the Department for Education giving it away without consent.
Identifying and sensitive data have been given out about individuals to third parties from the national pupil database; over 1,000 times as of May 2017, including for commercial re-use to companies, to charities, and even to TV and press journalists.
No one has told children or parents these information will be sent to the national database, distributed to others, or stored forever.
Since 1996 every child who has been in state school has had their confidential data sent to national pupil records that describe a child's school life; their behaviours, results, absence, exclusion reasons like theft or drug and alcohol related, plus their detailed personal data; date of birth, home addresses, ethnicity and more, including full names since 2002.
Letters to the Secretary of State for Education under the #LabelsLastaLifetime campaign, calling for change, were signed by over 20 leading child rights advocates, and organisations including The Royal Mencap Society, the Alliance for Inclusive Education, and young offenders mentoring charity Trailblazers.
With the support of Leigh Day and Louise Price of Doughty Street, we intend to take this challenge to court – and we need your help to fund the legal costs of judicial review.
You can follow updates on our timeline of events.
- Please help us hold government to account and restore children's rights.
- Share this on social media with family and friends.
- Give 5 minutes to send your MP a question or tell them your concerns and call for change. Please take action here.
- Please pledge now. #LabelsLastaLifetime
Every child has the human right to education, to privacy, and to have the chance to flourish and reach their full potential. We will only be able to defend our children's freedoms with your help. Please pledge to donate now, and share with friends and family. Thank you.
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July 6, 2024
An update on our legal action
In 2018 we began regulatory and legal action with a legal team at Leigh Day. We have decided to end these challenges, and to continue work in these areas in other ways.
Through regulatory and legal routes we have managed to bring about some significant changes to practice and policy since 2018.
Letters to the Secretary of State for Education under the #LabelsLastaLifetime campaign, calling for change early on, were signed by over 20 leading child rights advocates and organisations including The Royal Mencap Society, the Alliance for Inclusive Education, and young offenders mentoring charity Trailblazers. We began this because of the new and ongoing breach of rights due to the lack of communication to the children and families affected by the 2018 Alternative Provision census expansion.
After our legal team with Leigh Day and Monckton Chambers submitted a regulatory case, the ICO carried out an audit of the DfE in 2019-20 which resulted in a reprimand issued to the DfE and a complete overhaul of internal policies, and package of work. (And we continue to work to obtain the full outcomes of these changes).
Through that, we ensured the first data protection impact assessment was carried out of the National Pupil Database and summaries were published for the first time in 2019. These revealed the news that sexual orientation and religion is being stored in the NPD shared by HESA to the OFS and UK higher education bodies. We continue to work towards change of policy here, so that student equality monitoring is retained only as statistics not on a named basis.
After the Nationality and Country-of-Birth data stopped being collected in the school census in June 2018, we continued to pursue its destruction, after providing evidence that data completeness made it unusable and retention was unnecessary. The data was destroyed in 2020 after the ICO audit. There has been less ICO support on misuse for new purposes in the Hostile Environment that are incompatible with the original reasons for why children’s data is collected in the first place, to promote the education and wellbeing of children.
While acknowledging what the ICO has done and that the DfE *has* changed practices, a lack of dissausive enforcement action and recognising the difficult current legal landscape in England, means it is most sensible to discontinue our ongoing legal challenges of the current government policy. This includes the daily collection of attendance and absence data from every child together with digital rights legal firm, AWO. Although we had a strong, well researched and evidenced case, we were refused permission by the courts to pursue to the next stage. The ruling does not dispute or affect the significance of the concerns that the Information Commissioner had raised, or our own view at Defend Digital Me that there is unlawful practice and excessive data collection and retention. We continue to work to change and improve this through other routes and in our work as a whole. We have not ruled out further future legal action. But we hope the next government will end bad policy and practices, bring in better, and continue to push the Department for Education along the path for improvement it has been on.
Most importantly, we are enormously grateful for the financial support we received from individuals and organisations and collective action. We are now closing the crowdfunder for all related work, the full funds for which have already been used as part of the total costs paid to the legal firms involved since 2017. We are grateful to the Digital Freedom Fund for the bulk of the financial support that made this work possible. We will continue to campaign for children’s fundamental rights in national pupil data including the right to refuse to be commercially exploited through the state, just because a child goes to school. An opt in/-out in legislation is urgently needed.
For anyone that wants to continue to support our work financially, you can donate here instead, as we always need and welcome our supporters help. You can sign up for our latest news and updates online. Thank you.
defenddigitalme
Oct. 14, 2022
National pupil data: next steps towards legal action
It is now two years and one week since the ICO published their summary of a regulatory audit concerning the Department for Education's ("DfE") failure to comply with data protection law. On the anniversary, the DfE published a short blog about the School Census but failed to mention the audit or give any update on it, despite long overdue previous promises made to MPs in Parliament to do so. It failed to mention rights. It was rather misleading about whose data was in the data released to third parties, and the process around it.
Not only has the DfE refused to publish a copy of the full ICO audit report or any timeline to assess what was and was not to be actioned by when, but it has repeatedly failed to provide details that were promised of the steps that they are taking to address the failings. In the meantime, as far as we can see, the DfE’s practices in relation to the collection and sharing of children’s information seem to continue largely unchanged, and worse, have continued to ignore necessary changes before starting further new data expansions.
The National Pupil Database includes information collected annually at child-level, as part of the Alternative Provision Census. This information includes extremely sensitive information concerning any special educational needs; learning difficulties; social emotional and mental health needs; speech, language and communication needs; physical disability; autistic spectrum disorder; vision impairment; hearing impairment; or other difficulty or disorder. It also requires the disclosure of matters such as pupils’ pregnancy; mental health or physical health need; permanent exclusion, or the fact that a child has been placed in a young offender institution. We first complained to the ICO and the DfE on this in 2017.
The current deficiencies include a failure by the DfE, as described in the ICO audit to comply with the transparency and notification obligations required by the UK General Data Protection Regulation and the Data Protection Act 2018. The DfE has failed to provide a Privacy Notice to parents and children setting out what information is collected, why it is collected, and what is then done with it. Linked to this, the DfE does not appear to have appropriate procedures and safeguards in place in relation to the handling of this information. This should include mechanisms for enabling the right to object to the processing of the data, allowing inaccurate data to be corrected, and adequate safeguards in relation to sharing of the data with third parties.
We have therefore instructed solicitors at Leigh Day, and barristers at Monckton Chambers. We have sent the Department a detailed 29-page Letter Before Claim setting out the ways in which we consider that the DfE is behaving unlawfully. We have requested a response within 21 days. In the absence of a satisfactory response that addresses the concerns, we anticipate issuing formal Court proceedings by making an application for permission to apply for judicial review.
You can help us by supporting us to raise funds for the legal costs associated with investigating and bringing this legal claim, including the risk of having to pay the DfE’s legal costs if the challenge is unsuccessful. You can help us here by sharing this page. Thank you to all our supporters so far, who have made the long process to get here possible. We’ve still far to go and we hope you’ll stick with us.
defenddigitalme
Feb. 10, 2021
Responses to the ICO Audit and next steps
The Department for Education (DfE) has published its response to the ICO audit. You can read what the DfE released here.
There are still lots of unanswered questions one year after the exposure of gambllng companies using personal data from the national Learners Records Service.
As Nigel Nelson and Jo Phillips asked on the BBC Papers on the day the story broke: “This is an absolutely shocking story.” “You would expect it would only be used for educational purposes.” “Do we know whether these people could get data about disabilities or special educational needs?” “12,000 organisations have access to this database.” “Who are these people, and why?”
There is still lots to do to make the national pupil data handling lawful, safe, fair and transparent to every person who the records are about. We and our legal team are expecting responses any day now from the DfE, on what happens next. Whatever it is, we will work day and night to get it made right.
Short term responses in the pandemic by the DfE have been reactionary and contradictory but many will have long term implications; on the one hand making back to school messaging about looking after the most disadvantaged pupils while also planning to undercount school funding needs for the least well off pupils. Propping up the 'Tech Giants' and sending out devices but while having no vision for long term edTech use in a learning environment and its purpose in education.
We are therefore honoured and delighted to have received a big boost to our long term efforts and legal-fighting-funds from @CARE2Liberate and @BlackEdAllies today, in solidarity with our work with No More Exclusions on the reasons-for-exclusion data collected in the Alternative Provision Census, and our campaigns rooted in social justice. They’re all on Twitter @CARE2Liberate and @BlackEdAllies and @NExclusions.
Thank you NME. And thank you to all our supporters. If you can, please share this crowdfunder with friends and family. Together we are making a difference. You can also take action via our website. Find out what's in your own or your child's national pupil records. It's free and confidential. It's about you.
See and share the short film #MyRecordsMyRights at https://youtu.be/ash1YlIC1BA.
defenddigitalme
Oct. 8, 2020
Progress! ICO finds DfE in breach of data protection law
Yesterday the ICO published its summary of findings from a compulsory audit of the Department for Education. It was damning and far reaching.
The Department’s data handling is unsafe, unaccountable and unlawful.
The audit found that data protection was not being prioritised and this had severely impacted the DfE’s ability to comply with the UK’s data protection laws. It made a total of 139 recommendations for improvement, with over 60% classified as urgent or high priority. The DfE are not fulfilling their duties that data "shall be processed lawfully, fairly and in a transparent manner.”
What's next?
The Department will need to be transparent about its failings and measures in place to fix them. We welcome that the ICO has found what was necessary and appears to expect action from the DfE. The facts and evidence speak for themselves that regulatory intervention was long overdue but now the Department needs scrutiny and to make public commitments to change. We will continue our legal action if the changes are not satisfactory to make all pupil data safe, fair and transparent.
Thank you to all our supporters so far. You help us hold government to account.
You can continue to help us.
- Email your friends about our success and to pledge support to our case
- Post a link on social media
- Tweet in support.
- Watch and share our animation and call to action.
- Please pledge again if you can as we need all the help we can get to keep going
You can also take action via our website. Email your MP based on our supporters' template. Call on them to support a rights' respecting digital environment in education. Find out what's in your own or your child's national pupil records. Share the latest updates. Thank you.
defenddigitalme
July 15, 2020
Taking Action in 2020
Since we started this case in 2018 we've been working hard behind the scenes. It's taking time, but we are making progress and we won't give up.
Thank you to all our supporters so far. You help us hold government to account.
With support from the Digital Freedom Fund our legal team has continued to work on the case from our work with the Supervisory Authority and into 2020 and we're delighted to see our case included in their Annual Report.
You can continue to help us too.
- Email your friends to pledge support to our case
- Post a link on social media
- Tweet in support.
- Watch and share our animation and call to action.
- Please pledge again if you can.
You can also take action via our website. Email your MP based on our supporters' template. Call on them to support a rights' respecting digital environment in education. Find out what's in your own or your child's national pupil records. Share the latest updates.
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