My name is Amir. My wife and I came to the UK as students. We have a 3 year-old daughter called Asma, born in the UK and suffering from a very rare and severe genetic skin disorder called Harlequin Ichthyosis since birth. We have already lost our eldest daughter who was born with a milder form of the same disease, but succumbed to infections that could not be treated in Pakistan. 

We have a multidisciplinary team that have assisted Asma from birth and allowed her to survive. All the medical advice is that there is no survival possible in Pakistan for children with this condition. The paediatric Expert, Dr O’Donohoe had said...

"I have not been able to identify any report from Pakistan suggesting that the improved survival evident in the UK and USA is yet being seen in Pakistan. This may be summarised by the quote from the 2014 article by Rasul , Gul and Tahir that “In general, harlequin fetuses do not survive for long. Death is often due to dehydration, systemic infection or impaired respiration." " 

Please help us to obtain leave to remain in UK by winning our legal battle so that Asma can continue living here and progress with her ongoing treatments.  We need financial support to cover our legal expenses and the cost of a new report from a specialist paediatric dermatologist.

We and Asma need your support so please share this page and help raise the funds. Right now, we are in the process of judicial review for the refusal of our appeal.

We need around £3,000 to cover all the expenses.

We as a family will always be thankful to this forum for this support.